- First off today was my visit to my rheumatologist. He checked me out, took a look at all of my lab work (which is pretty extensive since I get it done each time I have a surgery and I saw him 3 surgeries ago lol), and asked me where it hurts the most. The happy part of my visit was when he told me I should be much worse than I am and that it is miraculous I am doing so well...(physical and emotional trauma are two pretty BIG flare factors and put the last 7 months together and I should be at wheelchair status by now). He told me to continue to stay off of the chemotherapy until further notice, as he doesn't want any negative interaction with my bone growth from the next surgery.
- After the Dr appt I came away happy and full of anti-inflammatory pain pill prescriptions that I can fill and take ONLY up to a few days before and well after my next surgery...so yea for some pain relief! My friend Jinkee texted me right as I was walking to the parking garage and asked if we could do lunch. I was going to grab a bit anyway, so I was delighted that our schedules worked out so well as to eat together! What a treat! We did Soup Plantation today and oh my goodness there were so many soups to choose from! We had a wonderful time chatting about Christmastime and families. It was nice to get out. My life is sort of in limbo right now since the Orthopedic Dr. hasn't called me back to schedule more testing or my surgery. I literally could be in the hospital next week, or home wrapping presents! I have a hair appointment next Wednesday so let's just hope my surgery is for after that...what? I can't have nice hair AND get my arm grafted??
- After lunch I did some make up sessions at work that I missed on Monday. It was nice to come home after that and be with the kids. I have been so stressed not knowing when I am going to be in the hospital, but I set all of that aside tonight and read stories, snuggled, played make-believe, and got Connor saying 3 word utterances... the speech therapist in me was left over from working with two 2-yr old kids today what can I say? Connor cracks me up. Tonight I told him if he did something ONE more time, I would take the thing away. So he does the thing I told him not to do, looks at the object in his hand, and walks up and hands it to me. David was LAUGHING! We are in trouble with that one if that is how he goes through life.
A journal of a few happy occurrences each day in my life to help me find the joy and keep a good perspective.
Thursday, December 1, 2011
Day 102
It still seems weird to me to be in the triple digits on this blog, but I guess that is where I will be until the end so I should really get used to it!
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